Employer profile
Achse Online
Berlin, DEImpact-drivenAssociationHealthcareSocial Services
Impact3Sustainability Goals
LocationBerlin
About us
Achse Online (ACHSE e.V.) is a leading organization in Germany dedicated to advocating for and supporting individuals with rare diseases. Its core mission is to empower the "common voice" of those affected and actively influence health policy. The organization provides comprehensive information, offers consultation through its "Team ZEBRA," and fosters change through projects, campaigns, and networks. A key initiative is the annual Eva Luise Köhler Research Prize. Achse Online is also committed to transparency, participating in the "Initiative Transparente Zivilgesellschaft."
Connect
Sustainability Goals
Good Health & Well-Being
Health and well-being for rare disease patients
The organization offers consultation services and fundamental knowledge to affected individuals and their relatives, easing the challenges of living with a rare disease and improving healthcare access.
Reduced Inequalities
Reducing inequalities in healthcare
Achse Online advocates politically against austerity plans that disadvantage people with disabilities, thereby strengthening the rights and visibility of patients with rare diseases in society.
Industry, Innovation & Infrastructure
Research and innovation for rare diseases
The annual Eva Luise Köhler Research Prize specifically promotes scientific innovations aimed at improving the diagnosis and treatment of rare diseases, strengthening medical infrastructure.
FAQs
Q1What is the core mission of Achse Online?+
Achse Online (ACHSE e.V.) is dedicated to advocating for and supporting individuals with rare diseases in Germany. The organization empowers their "common voice," influences health policy through official statements, and actively works to achieve goals for patients. It provides comprehensive information and fosters change through various projects, campaigns, and networks.
Q2What key services does Achse Online offer?+
Achse Online offers "Beratung für Betroffene und Angehörige" (consultation for affected individuals and their relatives), notably through its "Team ZEBRA." It also provides fundamental knowledge ("Grundwissen") and insights ("Seltene Einblicke") into rare diseases, maintaining a "Presse- und Medienservice" and a "Mediathek" for information dissemination.
Q3What is the Eva Luise Köhler Research Prize for Rare Diseases?+
The Eva Luise Köhler Research Prize for Rare Diseases is awarded annually by Achse Online in partnership with the Eva Luise and Horst Köhler Stiftung. It recognizes outstanding research in this field, most recently honoring Dr. Arcangela Iuso and Dr. Lucia Laugwitz on April 17, 2026.
Q4How does Achse Online ensure transparency?+
Achse Online participates in the "Initiative Transparente Zivilgesellschaft" (Transparent Civil Society Initiative) and publicly provides its "Finanzberichte" (financial reports) and "Tätigkeitsberichte" (activity reports). This demonstrates the organization's strong commitment to openness and accountability to its supporters and the public.
Q5Where is Achse Online headquartered?+
Achse Online is headquartered in Berlin, Germany. From this location, the organization coordinates its nationwide activities for the support and advocacy of individuals with rare diseases.
Q6How can one financially support Achse Online?+
The organization encourages financial support through various donation options, including becoming a "Fördermitglied" (supporting member). This ensures the long-term sustainability of its projects, consultations, and self-help initiatives for people with rare diseases.
