Endometriose-Vereinigung Deutschland e.V.

The Endometriose-Vereinigung Deutschland e.V. (EVD) is a nationwide patient and self-help organization that has been committed to supporting and empowering those affected by endometriosis in Germany since its founding in 1996.

• Education and Information: The EVD provides comprehensive information about endometriosis, including symptoms, diagnosis, treatment, and social consequences of the disease. It offers free, independent informational materials and operates several social media channels to reach a broad audience[2][3].
• Consultation and Support: The EVD operates the only free endometriosis counseling center in the country, advising affected individuals and their relatives via phone, video, and in-person at the counseling center in Leipzig. Additionally, it supports the establishment and operation of over 80 self-help groups in Germany[2][3].
• Political Advocacy: The EVD is politically engaged at the municipal, state, and federal levels to improve the care situation for those affected and to establish endometriosis as a health and social policy issue. It works on developing a national strategy for endometriosis and advocates for the use of research funds to investigate the causes, diagnostics, therapy, and social consequences of the disease[1][3].

The main mission of the EVD is to ensure that all individuals affected by endometriosis in Germany receive the best possible care and can lead a fulfilling life with their condition. The association advocates for broad public awareness, supports all affected individuals through information, counseling, and exchange, and strengthens the position of patients. Transparency, independence, and close collaboration with medical professional societies and self-help organizations are central values of the EVD[2][3].

• Research and Development: The EVD supports the demand for a strategy for the use of research funds to investigate the causes, diagnostics, therapy, and social consequences of endometriosis. It has developed a research catalog in collaboration with medical professional societies that describes specific research areas and questions[1].
• International Cooperation: The EVD emphasizes the importance of international cooperation, particularly through participation in global action plans of the WHO, to improve the care situation for over 190 million individuals affected by endometriosis worldwide[1].
• Education and Prevention: The association advocates for educational offerings, especially for girls and young women, to raise awareness about endometriosis early on and to break the taboo surrounding menstrual pain. It provides extensive materials and projects for education and information[1][3].

The Endometriose-Vereinigung Deutschland e.V. is a strong and dedicated community that tirelessly works to improve the quality of life for those affected by endometriosis and makes a significant contribution to health and social policy through its diverse activities and initiatives.

• 1 - https://www.bundestag.de/resource/blob/940374/2a9ba76eaaaf6e9a648913f91d37f3b9/20_14_0092-3-_Endometriose-Vereinigung-Deutschland-e-V-_Endometriose.pdf
• 2 - https://www.endometriose-vereinigung.de/rund-um-den-verein/
• 3 - https://www.endometriose-vereinigung.de
• 4 - https://de.wikipedia.org/wiki/Endometriose-Vereinigung_Deutschland
• 5 - https://register.awmf.org/assets/guidelines/015-045l_S2k_Diagnostik_Therapie_Endometriose_2020-09.pdf