Employer profile
znm-zusammenstark.org
Stuttgart, DEImpact-drivenAssociationHealthcareScience & Research
Impact2Sustainability Goals
Employees2 - 10
Founded2015
LocationStuttgart
About znm-zusammenstark.org
ZNM – Zusammen Stark! e.V. is a German self-help association founded in 2015. The organization is dedicated to supporting individuals and families affected by centronuclear myopathies (ZNM), a group of very rare muscular diseases. It fosters a strong, cross-border community across Germany, the Netherlands, Belgium, Switzerland, and Austria. A core focus is on initiating and financing research projects to improve therapy approaches and pursue cures. The organization emphasizes transparency, publishing annual reports to ensure openness.
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Sustainability Goals
Good Health & Well-Being
Health and Well-being for Affected Individuals
ZNM – Zusammen Stark! e.V. provides families affected by rare muscular diseases with essential information, support, and organizes community conferences to improve their well-being.
Research for Rare Disease Therapies
The organization initiates and funds medical research projects into centronuclear myopathies to develop new therapeutic approaches and enhance prospects for cures.
Reduced Inequalities
Equality for People with Rare Diseases
The organization advocates for reducing inequalities in access to information, support, and medical care for individuals affected by rare muscular diseases.
Cross-Border Exchange and Support
ZNM – Zusammen Stark! e.V. fosters an international community to ensure exchange and support among families across national borders, reducing barriers to access.
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FAQs
Q1What is the mission of ZNM – Zusammen Stark! e.V.?+
The organization supports individuals and families affected by centronuclear myopathies (ZNM), a group of very rare muscular diseases. It provides vital information and support, organizes family conferences, and details available aid to foster a strong, cross-border community.
Q2What role does znm-zusammenstark.org play in research?+
The organization places significant emphasis on advancing ZNM research. It informs the public about current studies and actively initiates and finances research projects through donations to improve therapy approaches and pursue cures.
Q3Who and where does ZNM – Zusammen Stark! e.V. support?+
The organization supports families affected by ZNM across Germany, the Netherlands, Belgium, Switzerland, and Austria. It represents a community of 307 affected individuals, fostering strong, cross-border connections.
Q4How does znm-zusammenstark.org ensure transparency?+
The organization places high importance on transparency, demonstrated by a dedicated "Transparenz" section on its website and the publication of annual reports, such as the 2025 report.
Q5What societal impact does znm-zusammenstark.org have and which SDGs are addressed?+
The organization has a high societal impact, particularly in the field of rare diseases. It primarily contributes to SDG 3 (Good Health and Well-being) and secondarily to SDG 10 (Reduced Inequalities).
Q6When was ZNM – Zusammen Stark! e.V. founded and where is its headquarters located?+
The organization was founded in 2015. Its headquarters are located in Stuttgart, Germany.
